Oct 17, 2013

Blood Clot News: Simple urine test uses nanotechnology to detect dangerous blood clotting



Soon people with clotting disorders will be able to pee on a stick to find out if they're getting a clot.



"There is no fast and easy way to diagnose these clots, which often remain undetected until they break free and cause a stroke or heart attack. However, new technology from MIT may soon change that: A team of engineers has developed a way to detect blood clots using a simple urine test."

"The noninvasive diagnostic, described in a recent issue of the journal ACS Nano, relies on nanoparticles that detect the presence of thrombin, a key blood-clotting factor."

Read the Full Article Here:

http://phys.org/news/2013-10-simple-urine-nanotechnology-dangerous-blood.html

Stay safe, keep strong!

Martin R. Lemieux





Jun 4, 2013

Canada Stroke Awareness Month - Day 4 - Stroke Prevention (2/2):

As mentioned in Part I - About 1/6 people will be affected by a stroke within their lifetime. I talked about; High Blood Pressure (Hypertension), High Blood Cholesterol, Atrial Fibrillation, and Diabetes.

Within this second part, I will talk about overcoming stroke triggers that a person needs to dig deep within their own heart, ultimately to save their own life, including;

• Being Overweight (Physical Inactivity)
• Excessive Alcohol Consumption
• Smoking
• Stress

Some of you might have sat there and cringed at the thought of overcoming even one of these factors. It's possible that each one of you suffers from at least one of these triggers at this very moment, maybe sometime in your past and possibly in the near future, so I will go about this with a soft tongue.

________________________

Being Overweight:


Losing weight affects all of us differently. For some of you, losing weight might not be as simple as eating better, since you might not feel in control over your weight due to; an eating disorder, or medication you take (i.e. Prednisone). I am here to tell you first off, you're not alone and you have the power to change!

I too have suffered from a little weight gain over the last 4 years. Not being able to use my legs has put me in a position to be very lazy at will. In my earlier years, I used to have an actual 8-pack for a stomach, ripped back muscles and a strong inner core. I miss those days like a plague. Every time I look in the mirror, it's a constant reminder of what I used to look like, compared to what I actually look like now.

So what am I doing to help?

Small baby steps. I got myself a doorjamb chin up bar that has multiple angles on it. With this I don't go do a crazy session daily, no instead I pull myself up 1-3 times every single time I walk by the chin-up bar, no matter what I'm doing. It's like an obsession; I can't go past the chin-up bar without touching it, that's my promise to me.

Something I do which can seem strange at times was taken by the late, great Bruce Lee who mentioned ways to work out using your home as the source. One of those ways includes; every time you pass through a door, you must push on both sides of the door frame outwards like your he-man trying to bring down the house. Sometimes my friends look at me funny, but understand what I’m trying to accomplish once I tell them what I'm doing. For me to go into my kitchen, I have to pass by 2 door frames there and back. That's 4 times in one trip I am strengthening my inner core.

Instead of using a mop to clean my entire place, which is covered with hard floors, I use a sponge which forces me onto my knees to painstakingly scrub the entire place, one small section at a time. Do this and I swear your arms will burn afterwards and you'll feel a little tired, but also energized afterwards.

Every Sunday is garbage day; I am very environment conscious and recycle practically everything I use up during the week. With this I meticulously take out one or two pieces of recycling material to the blue bins outside until all the materials are all sorted out. Remember the door-jam thingy? And the chin-up thingy? I pass through 3 doors and the chin-up bar each time I go outside, not to mention down the stairs and the same training obstacles coming back. So that's; 2 sets of stairs, 6 door-jam pushes, and 2 chin up sessions for every little piece of recycled material that leaves my place.

Sounds crazy? It works big time and when you start doing it over and over, it becomes as familiar as walking, you don't even think about it after a while, in fact, you'll find yourself stopping at every door-jam by habit.

"By achieving and maintaining a healthy weight, you can significantly reduce your risk of heart disease and stroke.  A healthy weight can also help control other conditions such as high blood pressure, high blood cholesterol and diabetes." Source: HeartandStroke.com

"Another way to determine if your weight falls within a healthy range is to calculate your Body Mass Index (BMI)." Source: HeartandStroke.com

Calculate your BMI with this chart:
http://www.heartandstroke.com/site/c.ikIQLcMWJtE/b.3484281/k.515D/Healthy_living__Assess_your_weight.htm

______________________________

Excessive Alcohol Consumption:


I can see you right now, "I don't have an alcohol problem". Keep telling yourself that, you're right! Well in your own mind anyways. The easiest way to know if you have an alcohol problem is to ask your friends and family members if they think you do or not, they'll tell you the honest truth and yes, the truth might hurt for a while, but accepting will become easier over time.

Many years ago, I too had an alcohol problem, I used to drown my illnesses with booze so that I would feel like a normal person, but what I didn't realize is that it affected all the closest people around me. Knowing that is what helped me to control my urges and to eventually stop from being a non-functional alcoholic. These days I've learned to control my consumption to; sometimes a glass of wine during dinner, or a couple of beers while watching a UFC fight with friends. The point is we each have it within ourselves to stop loosing the fight and start gaining our lives back, one less drink at a time.

There are many groups and organizations out there ready to help, but you have to want it bad enough to change. You would think that a stroke, or death might be a motivator, but sometimes those aren't enough, you need to find what that one thing is that will motivate you to change. For me it was my health and my son, I didn't want to continue on a path to destruction and not be around later on for my son.

What did I do? Easy, just stopped going to bars all together, found another way to socialize and banned alcohol from my home. That's it, that's what broke the camels back so to speak.

Whatever you decide, I can't do it for you. Your "WHY" must be deep and personal and be strong enough to sometimes piss you off to the point that you're almost mad at yourself for being this way. That motivation can drive you in ways you never thought possible.

If you drink alcohol, limit yourself to no more than:

• two drinks a day, to a weekly maximum of 10 for women*
• three drinks a day, to a weekly maximum of 15 for men*

“A drink” means:

• 341 mL / 12 oz (1 bottle) of regular strength beer (5% alcohol).
• 142 mL / 5 oz wine (12% alcohol).
• 43 mL / 1 1/2 oz spirits (40% alcohol).

View the low-risk drinking guideline:
http://www.ccsa.ca/2012%20CCSA%20Documents/2012-Canada-Low-Risk-Alcohol-Drinking-Guidelines-Brochure-en.pdf

______________________________

Smoking:


What can I say about smoking? well 1st of all, I was a smoker for 20 years! I'm 34 now and I smoked for 20 years, you do the math! I recently just quit since I had to in order to be accepted into a rare treatment for Hyperbaric Oxygenation Therapy, due to the fact that smoking reversed the affects of the treatment.

I'm not too sure what you tell you that you haven't already heard from your own doctor about the risks of smoking. I think that's why I won't spend too much time trying to convince you to stop, I'm sure you've had numerous people who have tried and failed.

I'll leave you with this quote:

"Being smoke-free has enormous benefits for your health and the health of the people around you. Once you become smoke-free and avoid exposure to second-hand smoke, you will immediately reduce your risk of heart attack and stroke. The sooner you become smoke-free, the sooner your body can start to recover and it doesn't take long to see the effects." Source: HeartandStroke.com

• Within one year of quitting, the risk of dying from smoking-related heart disease is cut in half.
• Within 10 years, the risk of dying from lung cancer is cut in half.
• After 15 years, the risk of dying will be nearly that of a non-smoker.

Enough said.

______________________________

Stress:


This one mental battle can be triggered from anywhere. Stress can be an instant nuisance or a battle raging internally over a period of time. The fact is everyone at one point in their lifetime feels the effects of stress at least once.

I barely get stressed out over anything, and trust me I have a lot in my life to be stressed about, but I've trained my mind to overcome stress and not to let things bother me in ways many people can't imagine. I'll give you a quote my doctor once said to me a little while ago, "Martin, I can't believe with all that you have going on physically with your conditions, I'm amazed at how you can keep your composure like you do!" You know what I told him? "Doc, it's not that things don't bother me, it's that I don't dwell on them when they occur, in one ear and out the other and move on with my life making decisions to better myself, that's it!"

I told my doctor one time, "you could sit there and tell me that I have cancer and I would tell you, ok let's get started on treatment!" See It's not that I don't feel anything, it's that I don't let the thought stew in my mind, the longer you dwell on the things that bother you, the more power you give to them.

The key is to keep in control and be mindful of what you think about. Most stress, depression, and anxiety are self afflicted in our own minds. We do it to ourselves essentially.

Stress is completely manageable by not giving negative thoughts the power to stress you out. There are many triggers in life all around us, the key is not ignore them, but to face them head on and decide right then and there that those triggers no longer have power over you, essentially you are in control of your mental health.

Remember, it's not about being heartless and not caring, in fact the opposite; it's about feeling it and releasing it right away. You must feel the triggers that stress you out in your life, but then release them immediately to prevent those feelings from taking over and sending you into a deep dark cavern of a looping mental battle you can never win.

This doesn't happen overnight, but I affirm to you that the more you become aware of what stresses you out, the more you can release the power it has over you and start to feel at peace with yourself. You must accept that life will throw you curve balls all the time, it's the universe's way of testing your will power, testing your determination and willingness to live happy.

As you can see, I'm very passionate about this subject, that's probably why I'm in the final process of publishing a book about the very thing I just talked about titled: "The Secret Ingredient to your Noodle!"

In Conclusion:

The best way to wrap up this II part series is with these affirmations...

Self awareness is only powerful when knowledge is understood and applied, only then can it manifest into true wisdom!
- Martin R. Lemieux

I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.
- Maya Angelou

Too many of us are not living our dreams because we are living our fears.
- Les Brown (lesbrown.com)

"Our tendency is to pray for miracles. But in most situations, it is more appropriate to pray for opportunities.. Visionaries look for an opportunity to do something."
- Andy Stanley, Visioneering

Health is the greatest gift, contentment the greatest wealth, faithfulness the best relationship.
- Buddha

Either you change with me, or lose me to change!
- Martin R. Lemieux

Yes, you can be a dreamer and a doer too,  if you will remove one word from your vocabulary: impossible.”
-  Robert H. Schuller, American Reformed Church Minister

==

Sincerely,
FB Cause: https://www.facebook.com/pages/The-Blood-Revolution/444146745678515

..

Jun 3, 2013

Canada Stroke Awareness Month - Day 3 - Stroke Prevention (1/2):

About 1 in 6 people will be affected by a stroke within their lifetime. That's a major part of the human race. There are known prevention tips that help increase your odds. Below I've gone through some healthy living ideas to prevent this deadly killer from touching you or your family.

• High Blood Pressure (Hypertension)
• High Blood Cholesterol
• Atrial Fibrillation
• Diabetes
• Being Overweight
• Excessive Alcohol Consumption
• Physical Inactivity
• Smoking
• Stress

Most of these triggers can be easily prevented, for example; smoking, stress, being overweight, excessive alcohol consumption, and physical activity are things that most of us have control over. Some are easy, some are tough to let go, but ultimately it's within our power to help prevent a stroke.

___________________________________

High Blood Pressure (Hypertension):

"High blood pressure is the number one risk factor for stroke and a major risk factor for heart disease. It’s important to keep your blood pressure in a healthy range. If you think you may be at risk or you have already been diagnosed with high blood pressure, here is some step-by-step information on how to manage it successfully." Source: HeartandStroke.com

The key to successfully managing your blood pressure is through self-testing. Home test kits are available, as well as having a regular check-up with your doctor. Hypertension Canada is a great source of information to better educate yourself in the effects of high blood pressure prevention no matter where you live in the world.

For more info, visit: http://www.hypertension.ca/

________________________

High Blood Cholesterol:

"There are 2 types of cholesterol - good and bad. It's so important to keep it at healthy levels because high blood cholesterol is a major risk factor for heart disease and stroke. If you think you may be at risk, are interested in preventing or have already been diagnosed with high blood cholesterol, here is some step-by-step information on how to manage it successfully." Source: HeartandStroke.com

High blood cholesterol can be easily managed through your fat intake through your diet. Many publications online show you how to manage your cholesterol intake, knowing this information can help to prevent a stroke later on in your life. High cholesterol is especially dangerous in men 40 and over, and within women 50 and over.

Here's a link to "Canada's Food Guide":
http://www.hc-sc.gc.ca/fn-an/alt_formats/hpfb-dgpsa/pdf/food-guide-aliment/view_eatwell_vue_bienmang-eng.pdf

____________________

Atrial Fibrillation:

"Atrial fibrillation (AF) is a condition involving an irregular heart rhythm, known as an arrhythmia. It is the most common type of arrhythmia, affecting approximately 350,000 Canadians. Generally, the risk of developing AF increases with age and with other risk factors such as diabetes, high blood pressure, and underlying heart disease. One of the main complications of atrial fibrillation is stroke. Individuals with atrial fibrillation have a risk of stroke that is 3 to 5 times greater than those without AF." Source: HeartandStroke.com

Most causes of Atrial Fibrillation are unknown. Some include; high blood pressure, congenital heart diseases, pulmonary embolism, alcohol, and some other triggers.

The key is to check with your doctor if you feel something not right with your heart beats, dizziness, vomiting, fatigue, sweating, or any irregular symptoms.

To listen to what AF sounds like, listen to this audio file:
http://www.heartandstroke.com/atf/cf/%7B99452D8B-E7F1-4BD6-A57D-B136CE6C95BF%7D/afib.mp3

_________

Diabetes:

"Diabetes increases the risk of high blood pressure, atherosclerosis (narrowing of the arteries), coronary artery disease and stroke, particularly if your blood sugar levels are poorly controlled. It can also result in circulation problems caused by damage to the blood vessels." Source: HeartandStroke.com

There are many people who suffer from; Type 1, Type 2, and Gestational diabetes and don't even know it. This condition is not to be taken lightly and MUST be managed at all times. There can be detrimental side-effects if not take seriously, by watching insulin levels and having a proper diabetic lifestyle, including eating properly.

I know a few individuals who test their limits all the time and use insulin as a way to justify their food intake, this method of self-administering is very dangerous. Diabetes must be respected and treated properly using guidelines set out by your doctor, or association.

Because of my blood disorders, I am forced to go into a Hyperbaric Chamber for 2 hours a day to heal my leg ulcers. This is a common factor for people who don't manage their Diabetes properly. You have the ability to prevent this from happening to you.

More info at the Canadian Diabetes Association:
http://www.diabetes.ca/

_______________

In Conclusion:

This concludes part one of this two part series. Tomorrow I will go into triggers that we as humans take for granted when it comes to our health. Living healthy is a lifestyle, but it's a choice we must all choose to make. It's never too late to help yourself by preventing life threatening conditions from manifesting.


Sincerely,
Martin R. Lemieux

@CanadaBloodClot 
@Martin_Lemieux
@Blood_Disorder (#TheBloodRevolution)

FB Group: https://www.facebook.com/BloodDisorderNetwork
FB Cause: https://www.facebook.com/pages/The-Blood-Revolution/444146745678515


..

Jun 2, 2013

Canada Stroke Awareness Month - Day 2 - Stroke Facts:


Strokes are a serious health risk for millions of people every year. The number of people affected is astonishing. There are things you can do to help prevent strokes, which revolves around a healthy style of living and being active. Below are some staggering facts about strokes around the globe.

________________

United States:

• Yearly Deaths - 130,000
• Number of Strokes - 795,000 / year
• Blood Clot Factors - 87% of strokes
• Strokes - Leading cause of long term disability

________________

United Kingdom:

• Yearly Deaths (2010) - 50,000 / 4th leading cause
• Stroke Survivors - 1.2 Million
• Number of Strokes - 152,000 / year
• 25% of all Strokes - 65 years and younger
• Strokes in Children - 400 Children (0-18) / year

________________

Canada:

• Number of Deaths - 14,000 / year
• Fact - Leading cause of death in Canada
• Number of Strokes - 50,000 / year
• Children - 200-300 are affected yearly
• Affected People - 315,000
• Gender Prodominent - Females
• Types - 80% (Ischemic), 20% (Hemorrhagic)

________________

Australia:

• Number of Deaths - 2nd Biggest Killer
• Fact - 1/6 People suffer from a stroke in their lifetime
• Number of Strokes - 50,000 / year
• 30% of all Strokes - 65 years and younger
• Affected People - 420,000 (709,000 est. in 2032)
• Strokes - Leading cause of long term disabilities

________________

Sources of Data:

UK:
http://www.stroke.org.uk/news/stroke-facts-and-statistics-your-area

US:
http://www.cdc.gov/stroke/facts.htm

CAN: http://www.heartandstroke.com/site/c.ikIQLcMWJtE/b.3483991/k.34A8/Statistics.htm#stroke

AUS:
http://strokefoundation.com.au/health-professionals/tools-and-resources/facts-and-figures-about-stroke/

________________

In Conclusion:

Those are just some examples of stroke statistics around the globe. Most people know someone who's had a stroke, but rarely do they become involved and find out if they too are susceptible to this silent killer. There IS hope!!! The key is to stay healthy through; eating, substance prevention, exercise, regular check-ups and much more. We have the ability to help prevent a stroke, now is a good time to start 

Sincerely,
Martin R. Lemieux

Blood Disorder Network:
http://www.facebook.com/BloodDisorderNetwork

Twitter:
@Martin_Lemieux
@Blood_Disorder | #TheBloodRevolution
@CanadaBloodClot

Jun 1, 2013

June - Canada Stoke Awareness Month!

Please show your support for Canada Stroke Awareness Month. Assess your risks, research online for more knowledge, connect with groups online including:

FACEBOOK:


Blood Disorder Network:
https://www.facebook.com/BloodDisorderNetwork

Strokes Suck Canada:
https://www.facebook.com/groups/343613378649/

Running After a Pulmonary Embolism:
https://www.facebook.com/groups/81164797980/

Know Your Risks:


































Source: www.HeartandStroke.ca


Sincerely,
Martin R. Lemieux

@CanadaBloodClot 
@Martin_Lemieux
@Blood_Disorder (#TheBloodRevolution)

FB Group: https://www.facebook.com/BloodDisorderNetwork
FB Cause: https://www.facebook.com/pages/The-Blood-Revolution/444146745678515

..

May 31, 2013

Vasculitis Awareness Month - 5 Day Countdown - Day 1 - Vasculitis Sample Pack from VasculitisFoundation.org

A few weeks back, even thought I didn't live in the U.S., I wanted to see if I too could get a free information package by mail. To my surprise, it only took a little over a week and presto, a very detailed information package about Vasculitis and also about the wonderful foundation supporting Vasculitis awareness across the globe.

My sincere thanks to the team athttp://www.VasculitisFoundation.org/ ! ! !





FB Cause: https://www.facebook.com/pages/The-Blood-Revolution/444146745678515

..

Vasculitis Awareness Month - 5 Day Countdown - Day 2 - Treatments for Healing Vasculitis & Vasculopathy



Vasculitis vs. Vasculopathy: "Vasculitis occurs when inflammation in the blood vessel wall leads to its destruction and Vasculopathy when a thrombus forms in the arterial lumen and compromises blood flow. The difference is subtle but important to distinguish since there are divergent diagnoses and treatments for Vasculitis and Vasculopathy." Source: Cutis.com

_____________________

Vasculitis Treatment:

Steroids: Treated with doses of a corticosteroid drugs including; Prednisone, methylprednisolone (Medrol).

Immune System: If steroids aren't effective, especially in severe cases, they may need treatment with cytotoxic drugs that kill immune system cells responsible for causing inflammation.

Healing Time: 23 months > 21 Years

Cure: Unknown

_______________________

Vasculopathy Treatment:

Since most people have never heard of "Livedoid Vasculitis" aka "Livedoid Vasculopathy", I felt it necessary to dedicate a better part of this article on this rare unknown disease.

Livedoid Vasculopaty, or Livedoid Vasculitis, is a painful ulcerative condition of the lower extremities which characteristic clinical and histopathologic features. The lesions of atrophie blanche, a term once synonymous with the disease, are typically present on the lower extremities and are characterized by smooth, porcelain-white lesions surrounded by punctate telangiectasia and hyperpigmentation. Shallow central ulceration's is often present. The condition is difficult to treat and sometimes immune to therapy.

Let's take a look at these 1st, 2nd, and 3rd line treatments a little closely.

=====================

FIRST LINE THERAPIES:

=====================

• Wound Care (including bed rest and leg elevation)
• Aspirin
• Dipyridamole
• Pentoxifyline

Wound Care: Regular wound care using wraps, compression fittings, keeping the wound warm and moist to allow the healing process to be uninterrupted. Something most people aren't aware of, have you ever heard anyone say "Put some air on that wound to heal faster?"

Bzzzt wrong answer. Air only increases the edges to heal quickly to prevent infection and bacteria from taking over, this is why most people who don't attend to their wounds properly, and let air get to them, are left with a nasty scar tissue. The scar tissue is created from the body correcting itself too quickly.

I will soon spawn an entire multiple-part series on wound care shortly after Vasculitis Awareness Month.

Aspirin: This only helps if you don't have a blood disorder and you aren't already on some form of blood therapy involving anti-coagulants.

Dipyridamole: Prevents blood clots in valves, prevents patelets from sticking together. (Drug interactions: Warfarin / Heparin)

Pentoxifylline: Treats chronic circulation disorders of the arms and legs. Allow futher distance to be walked before leg cramp occurs. (Drug interactions: Warfarin / Heparin)

======================

SECOND LINE THERAPIES:

======================

• Danazol
• Warfarin
• Hyperbaric Oxygen Chamber

Danazol: Treat endometriosis (fibrocystic breast disease)

Warfarin: Anti-coagulant to prevent blood clotting or the act of breaking down clots already lodged within the circulatory system. If you have a blood disorder, chances are you're already on blood thinners which may not have any affect.

Hyperbaric Oxygen Chamber Therapy: Increases oxygen count within blood flow for increased healing. Oxygen is what actually heals, not just the blood. 8/10 Patients heals completely from the Hyperbaric Chamber Therapy, some patients relapse afterwards.

=====================

THIRD LINE THERAPIES:

=====================

• Low molecular weight heparin (injections)
• Fluindione (vitamin K antagonist)
• Intravenous immunoglobin (IVIG)
• tPA
• ILoprost
• Sulfapyridine
• Ketanserin
• PUVA

ILProst: Ventavis (iloprost) inhalation solution increases hemodynamics and exercise capacity in patients with pulmonary hypertension.

Sulfapyridine: A sulfonamide used as an oral suppressant for dermatitis herpetiformis (Duhring's Disease), a skin problem. (Side Effects: Glucose-6-phosphate dehydrogenase deficiency, lack of G6PD Enzyme)

Ketanserin: Effective in lowering blood pressure in essential hypertension. It also inhibits platelet aggregation.

PUVA: Prevent rapidly multiplying skin cells through an oral drug and ultraviolet light exposure.

Stanozolol: Steriods, same effects as Prednisone.

Nifedipine: Group of drugs (calcium channel blockers) that relaxes the muscles of the heart and blood vessels. (SIDE EFFECTS: Interacts with; Warfarin & Heparin)

In Conclusion:


Vasculitis and/or Vasculopathy has NO known cure. There are therapies which seem to suppress the symptoms, and in some cases, heal external wounds. Patients suffering from Vasculitis have had symptoms from 23 months to 21 years. This rare disease is something that may never go away.

Advances in science and medicine might improve over the years and hopefully for people like me, who still have many years of life to look forward to, a cure might be around the corner.

Do yourself and your; friends, family members and colleagues a favor, SHARE this post on your timeline. Also, click on the "LIKE" button within each Vasculitis group to get notifications and news from each one.

I hope this helps you to better understand what some of us are trying as therapies, even though we understand that in the end, there is no cure.

Vasculitis Awareness Month - 5 Day Countdown:
  1. Day 1 - Vasculitis Sample Pack from VasculitisFoundation.org:
  2. Day 2 - Treatments for Healing Vasculitis & Vasculopathy:
  3. Day 3 - Vasculitis Support Groups Online:
  4. Day 4 - Vascular Sub-Types:
  5. Day 5 - Vascular Disorders & Diseases:

Sincerely,
Martin R. Lemieux

@CanadaBloodClot 
@Martin_Lemieux
@Blood_Disorder (#TheBloodRevolution)

FB Group: https://www.facebook.com/BloodDisorderNetwork
FB Cause: https://www.facebook.com/pages/The-Blood-Revolution/444146745678515

..

May 29, 2013

Vasculitis Awareness Month - 5 Day Countdown - Day 3 - Vasculitis Support Groups Online

Here is a detailed list of support groups around the globe on the subject of Vasculitis and blood disorders. Many Facebook groups are also listed near the bottom. 

I hope you can gain the knowledge necessary to help with your; diagnosis, recovery, and support through this rare but deadly disorder.

=========================================

Vasculitis.ca:

"Vasculitis Foundation Canada mission is to encourage and support research efforts for the cause and cure for all forms of Vasculitis. To establish rapport with all known Vasculitis patients and try to alleviate the isolation of having an uncommon, life-threatening disease. We want to assist Vasculitis patients and their families with clinical information and coping strategies, to help them develop a strong and positive outlook."

http://www.vasculitis.ca/

=========================================

Vasculitis Foundation.org:

"The Vasculitis Foundation is the international organization for patients with Vasculitis, their families, friends and the health care professionals who care for them. The Vasculitis Foundation advocates for early diagnosis and leading edge treatment for all patients, no matter where they live. In addition, the Vasculitis Foundation partners with researchers around the world to determine the cause and discover the cure for Vasculitis."

http://www.vasculitisfoundation.org/

=========================================

Drugs.com Vasculitis Group:

A personalized support group on Vasculitis created by one of the members of Drugs.com. Post your questions and read more information.

http://www.drugs.com/answers/support-group/vasculitis/

=========================================

Inspire.com - Vasculitis Support Groups:

"Inspire was created with the belief that patients and caregivers need a safe and secure place to support and connect with one another. We strive to be ethical and transparent, and we never forget that our community is built upon the trust of our members. We place the utmost value on this trust, and maintaining it is our highest priority."

http://www.inspire.com/conditions/vasculitis/

=========================================

Vasculitis.org.uk - Local Support Groups:

"Everything is to be found here about Vasculitis UK, the charity: our aims, goals and objectives, the history, the people who run it, our finances, how you can join and how you can support and be involved in running Vasculitis UK. There is a section here on fundraising and on setting up a local Vasculitis support group."

http://www.vasculitis.org.uk/about/find-a-local-group

=========================================

American Behcet’s Disease Association:

"The American Behcet's Disease Association works toward the following goals: Providing information and support for patients with Behcet's Disease and for their family members and caretakers. Providing current and pertinent educational information to the medical community. Decreasing isolation and stress from the lives of people with Behcet's Disease and their family members."

http://www.behcets.com/

=========================================

Churg Strauss Syndrome Association:

"The Churg Strauss Syndrome Association is dedicated to the identification, treatment and cure of Churg Strauss Syndrome. The CSSA is operated and supported by volunteer efforts and is a network of patients, friends, and medical professionals."

http://www.cssassociation.org/

=========================================

Central Nervous System Vasculitis:

"The Central Nervous System Vasculitis Foundation provides information and support to patients, families and the medical community about the rarity of CNSV; it’s devastating impact on lives; diagnosis and treatment in order to improve overall quality of life, affect more positive patient outcomes, to develop effective medical treatments, and to assist in discovering a cure through scientific research."

http://cnsv.memberlodge.org/

=========================================

Giant Cell Arteritis & Polymyalgia Rheumatica:

"Listening - the primary purpose of our group is to listen to how the sufferers and/or carers are coping with these conditions. The Group finds this very helpful. The most common comment we hear at the group is, 'Nobody told me that'. If there is time we then discuss a topic related to our conditions, chosen by the members of the group."

http://www.pmrandgca.org.uk/

=========================================

Kawasaki Disease Canada:

"To promote the awareness of Kawasaki Disease among the medical community, childcare providers, and the general public, that is critical to early diagnosis and treatment"

http://www.kdcanada.ca/

=========================================

Bruce’s WG & Vasculitis Site:

"To assist Vasculitis patients in getting early diagnoses, effective treatments, and to advise of patient, organization, and scientific resources concerning Vasculitis."

http://www.wegenersgranulomatosis.net/

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Churg Association:

"The Churg Strauss Syndrome Association was founded in June, 2004 by two patients, Jane Dion (right) and Dr. Carol Kavanaugh (left). Its original purpose was to gain representation on the Vasculitis Clinical Research Consortium which had recently received more than six million dollars in funding for Vasculitis research."

http://www.cssassociation.org/

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Vasculitis Support NZ:

"Our aim is to provide useful information that is easy to follow for patients, family and friends regarding Vasculitis and how it is treated within New Zealand."

http://www.vasculitis.org.nz/

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FACEBOOK - Blood Disorder Network:

"A group created by a patient, Martin R. Lemieux who's years of experience is put to good use to help build awareness and support for members suffering from blood disorders, included but not limited to; Vasculitis."

http://www.facebook.com/BloodDisorderNetwork

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FACEBOOK - Vasculitis: More Common Than You Think. More Serious Than You Know.

"This group is to help spread awareness for vasculitis. This is a place where people can post their ideas about how to help raise awareness and stories that feature vasculitis. Our goal is to help patients help themselves and gain more "buzz" for these diseases which will lead to more research and hopefully, a cure."

https://www.facebook.com/groups/332547823431093/

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FACEBOOK - Vasculitis Foundation Canada / Fondation vasculites Canada

"Our mission is to support research efforts for the cause and cure for all forms of Vasculitis. To provide information and care to patients and families."

http://www.facebook.com/Vasc.Canada

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FACEBOOK - Society for Inherited And Severe Blood Disorders (T'dad & T'go Ltd)

"An awareness group for persons interested and living with inherited blood disorders"

http://www.facebook.com/pages/Society-for-Inherited-And-Severe-Blood-Disorders-Tdad-Tgo-Ltd/227781600567823

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FACEBOOK - The Blood Revolution

"A worldwide organization spreading the word about the affects of Blood Disorders."

http://www.facebook.com/pages/The-Blood-Revolution/444146745678515

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FACEBOOK - Vasculitis Foundation

"Awareness. Support. Research."

http://www.facebook.com/VasculitisFoundation

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FACEBOOK - Violin for Vasculitis

"Visiting 50 states to raise awareness of vascular disease."

http://www.facebook.com/violin4vasculitis

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FACEBOOK - Not all Disabilities are Visible

"Not all disabilities are visible - it doesn't mean they're not real."

http://www.facebook.com/Not.alldisabilities.are.visible.spoons

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FACEBOOK - Foundation for Women & Girls with Blood Disorders

"The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and adolescent girls with blood disorders are correctly diagnosed and optimally treated and managed at every life stage. The Foundation works to achieve this goal."

http://www.facebook.com/pages/Foundation-for-Women-Girls-with-Blood-Disorders/219812841425285

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FACEBOOK - Vascular Disease Foundation

"The Vascular Disease Foundation is committed to reducing death and disability for the over 40 million Americans affected by vascular disease."

http://www.facebook.com/pages/Vascular-Disease-Foundation/133262650017312

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FACEBOOK - A Rabbit Stuck in a Turtles Shell (Book)

"I've written this book in the hopes to educate, or foster if you will, a guide and insights into the world of the health industry from a chronic illness perspective."

http://www.facebook.com/pages/A-Rabbit-Stuck-in-a-Turtles-Shell/554268961262924

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If you are aware of more Vasculitis support groups, please feel free to post a comment below. I hope this helps everyone to gain the answers they are looking for.


Vasculitis Awareness Month - 5 Day Countdown:

  1. Day 1 - Vasculitis Sample Pack from VasculitisFoundation.org:
  2. Day 2 - Treatments for Healing Vasculitis & Vasculopathy:
  3. Day 3 - Vasculitis Support Groups Online:
  4. Day 4 - Vascular Sub-Types:
  5. Day 5 - Vascular Disorders & Diseases:

Sincerely,
Martin R. Lemieux

@CanadaBloodClot 
@Martin_Lemieux
@Blood_Disorder (#TheBloodRevolution)

FB Group: https://www.facebook.com/BloodDisorderNetwork
FB Cause: https://www.facebook.com/pages/The-Blood-Revolution/444146745678515
..

May 28, 2013

Vasculitis Awareness Month - 5 Day Countdown - Day 4 - Vascular Sub-Types:

There are many sub-types associated with Vasculitis. Unfortunately, Vasculitis is very uncommon and data that supports it is also small in comparison to other disorders known to mankind. Below are some known sub-types that are associated to Vasculitis.

___________________________________

Subtypes of small-vessel vasculitis include:

• Henoch-Schönlein purpura
• Acute hemorrhagic edema of infancy
• Urticarial vasculitis
• Cryoglobulinemic vasculitis
• Erythema elevatum diutinum

_____________________

Giant Cell Types include:

• Foreign-body giant cell
• Langhans giant cell
• Touton giant cells
• Giant cell arteritis

________________________________

Diseases characterized by Granulomas:

• Tuberculosis
• Leprosy
• Schistosomiasis
• Histoplasmosis
• Cryptococcosis
• Cat-scratch disease
• Sarcoidosis
• Crohn's disease
• Listeria monocytogenes
• Pneumocystis pneumonia
• Aspiration pneumonia
• Rheumatoid arthritis
• Granuloma annulare
• Granuloma faciale

_______________________

Rheumatoid Vasculitis Types:

• Ankylosing spondylitis
• Back pain
• Bursitis/Tendinitis
• Capsulitis
• Neck pain
• Osteoarthritis

Other rheumatic diseases which are caused by autoimmunity include:

• Systemic lupus erythematosus
• Rheumatoid arthritis
• Juvenile arthritis
• Sjögren syndrome
• Scleroderma
• Polymyositis
• Behçet's disease
• Reiter's syndrome
• Psoriatic arthritis


Vasculitis Awareness Month - 5 Day Countdown:

  1. Day 1 - Vasculitis Sample Pack from VasculitisFoundation.org:
  2. Day 2 - Treatments for Healing Vasculitis & Vasculopathy:
  3. Day 3 - Vasculitis Support Groups Online:
  4. Day 4 - Vascular Sub-Types:
  5. Day 5 - Vascular Disorders & Diseases:

Sincerely,
Martin R. Lemieux

@CanadaBloodClot 
@Martin_Lemieux
@Blood_Disorder (#TheBloodRevolution)

FB Group: https://www.facebook.com/BloodDisorderNetwork